An advisory panel to Japan’s health minister decided Friday to allow public health insurance coverage for a gene therapy for muscular dystrophy beginning Feb. 20 and set the drug’s official price at about 304.97 million yen. Elevidys, a one-time treatment for Duchenne muscular dystrophy in ambulatory patients aged 3-7, will become the country’s most expensive drug.
An advisory panel to Japan’s health minister decided Friday to allow public health insurance coverage for a gene therapy for muscular dystrophy beginning Feb. 20 and set the drug’s official price at about 304.97 million yen. Elevidys, a one-time treatment for Duchenne muscular dystrophy in ambulatory patients aged 3-7, will become the country’s most expensive drug.
A Tokyo man in his 50s who was forced to quit his IT job after developing Parkinson’s disease faced difficulties obtaining Japan’s disability pension due to the system’s requirement to prove the date of first medical consultation, highlighting structural hurdles for applicants. Kenichi Sato (pseudonym), 54, was told he needed to verify an initial clinic visit from about 20 years ago, but records had been discarded under the legal five-year retention rule for medical charts.
A Tokyo man in his 50s who was forced to quit his IT job after developing Parkinson’s disease faced difficulties obtaining Japan’s disability pension due to the system’s requirement to prove the date of first medical consultation, highlighting structural hurdles for applicants. Kenichi Sato (pseudonym), 54, was told he needed to verify an initial clinic visit from about 20 years ago, but records had been discarded under the legal five-year retention rule for medical charts.
The online survey was conducted by the Nippon Foundation last October targeting 2,500 family members of people with disabilities. Overall, 36.2% said they were “very anxious” about the future, 27.6% “anxious,” and 21.7% “slightly anxious.”
The online survey was conducted by the Nippon Foundation last October targeting 2,500 family members of people with disabilities. Overall, 36.2% said they were “very anxious” about the future, 27.6% “anxious,” and 21.7% “slightly anxious.”
Aichi Prefecture has reported a series of irregularities involving the handling of disability certificates, including incorrect data linkages tied to the national “My Number” identification system and more than 1,000 cases of improper administrative processing at a prefectural welfare centre.
While assigned to the center, a 27-year-old male employee from the Toyokawa Public Health Center issued certificates without obtaining the required approvals, recorded false review results in documents, and altered classifications to more severe levels. In interviews conducted by the prefecture, he explained to the effect that “administrative processing fell behind, and I altered the classifications to levels that applicants would accept.”
While assigned to the center, a 27-year-old male employee from the Toyokawa Public Health Center issued certificates without obtaining the required approvals, recorded false review results in documents, and altered classifications to more severe levels. In interviews conducted by the prefecture, he explained to the effect that “administrative processing fell behind, and I altered the classifications to levels that applicants would accept.”
Police in Kashiwa, Chiba Prefecture, plan to arrest a man in his 30s who formerly headed a disability group home on suspicion of assault resulting in death after a 19-year-old male resident with an intellectual disability died under suspicious circumstances in 2025. Investigators believe the former representative assaulted the resident, leading to his death, and are also examining possible liability among staff members who allegedly failed to report the abuse despite being aware of it. Police suspect the victim may have been subjected to routine violence and are continuing the investigation.
Barrier Free Japan