ALS Assisted Dying Disability Japan

“There are some compromises that need to be made, but if you talk patiently, you can live a free life that meets your wishes”, writes the late Yuri Hayashi, ALS patient

“There are some compromises that need to be made, but if you talk patiently, you can live a free life that meets your wishes."


By Barrier Free Japan

August 11 2020

It was reported on Thursday 24 July 2020, that two doctors were arrested by the Kyoto Prefectural Police for allegedly murdering a woman who had amyotrophic lateral sclerosis, or ALS, at the patient’s request. 

The deceased, a woman aged 51 named Yuri Hayashi, ran a blog and a Twitter account.

On September 16 2018, Hayashi writes a blog post that starts with the text “I love cats. However, I cannot take care of myself even though someone else takes care of me. (It may be possible to keep the cat if you take it seriously, but I am reluctant to ask the helper to take care of the cat.)”

It seems, along with a general concern about whether she could look after a cat, that there were concerns regarding an allergy her carer might have had “(What to do if there is a cat allergy in the helper, or hair remains)“:

It seemed Hayashi wanted to have a cat but becaus

“I love cats.

However, I cannot take care of myself even though someone else takes care of me.

(It may be possible to keep the cat if you take it seriously, but I am reluctant to ask the helper to take care of the cat.)

The visiting nurse’s cat lover, who I couldn’t see, took over the kitten of a protected cat, a seemingly docile child, to bring me to my place.

However, it was cherished by the care manager who had allergies to the cat, and it became important.

(What to do if there is a cat allergy in the helper, or hair remains)

Why do I have to do this? I was crying when I realized that I was terribly angry and became angry. I was messing around until the end, but I had no choice but to obey that day and meet in the lobby of the apartment on the first floor.

What kind of event did you come to the Nursing Station all together and my friends together? I felt like that.

Finally, when two-month-old mint-chan appeared from the basket and put it on his lap, I was so happy and started to cry again.

He was a very quiet child, and he was slowly riding on his knees, whispering.

I was truly healed by my shining straight eyes.

Because of such an important thing, the nurse alone could not bring Mint.

Half a year passed and I was sick and I stopped talking about cats.

A dog-loving doctor brought me an acquaintance Toy Poodle. I was riding on my bed and swung my nose.

I was told that he is a very cute child and will always bring me again, but I can’t beat a cat lover.

I think it’s tight, and if you like dogs, you can put cats in the room, right? !! Said to his doctor. (Really, the amount of hair loss is completely different.)

He gave me permission to bring me to the room at the nursing station.

Since then, when Mint-chan decides when he will come, he buys Chao Tulu at Amazon and waits.

It sounds like he’s been healed by the cat up to this point, but what I want to say is that there are many unexpected restrictions on the lives of people with severe disabilities.

why? !! It is often not convinced.

If someone says that they are particularly dangerous (injured) (even if it is based on individual subjectivity), it becomes a prohibited matter. In a terrible situation, a nurse in a hospital, who was hospitalized for only one week, would pass the opinions.

I’ve been fighting for everything I don’t understand.

When I was told to ask for medical assistance because of the danger of aspiration, when transfer was said to be dangerous with one-person assistance, and when excretion of one-person assistance was said to be on the bed,…

Of course, thanks to the helpers who help me. The helper’s physical and mental burden is also taken into consideration when deciding. Of course, I myself have stopped thinking that I should stop this.

What is always said when something goes up

“It is a cousin that good things at home do not have to be unified and set restrictions. You can proceed with things by respecting the wishes of the person and incorporating the opinions of helpers.”

So there are many vague things. The feeling depends on the skill of the helper. If you live at home for a long time, you can generally understand that “this person seems to be able to do this.” I will try to request it.

There are some compromises that need to be made, but if you talk patiently, you can live a free life that meets your wishes.”

0 comments on ““There are some compromises that need to be made, but if you talk patiently, you can live a free life that meets your wishes”, writes the late Yuri Hayashi, ALS patient

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: