ALS Assisted Dying Disability Japan

“The very first thing that they had to say was definitely wrong…‘First of all, I am beautiful and have beautiful soul.’ ” writes the late Yuri Hayashi, ALS patient

I have an inconvenient body, and I'm becoming more and more annoying because of the stress. So what is a beautiful soul? I thought.

By Barrier Free Japan

August 17 2020

It was reported on Thursday 24 July 2020, that two doctors were arrested by the Kyoto Prefectural Police for allegedly murdering a woman who had amyotrophic lateral sclerosis, or ALS, at the patient’s request. 

The deceased, a woman aged 51 named Yuri Hayashi, ran a blog and a Twitter account.

On September 23 2018, Hayashi posted a blog titled “Beautiful soul”. In it Hayashi relays a story about emailing someone about a shared love of sumo, during which the email correspondent describes Hayashi as a ‘beautiful soul’ and Hayashi wonders what that might mean:

I can’t quite meet friends living far away, but I love watching sports, so I always e-mail each other about the athletes I care about.

A friend of mine talked to me, a beginner of sumo, about the strengths of their favorite wrestler.

While writing the email, I also wanted to write about my good points, and the next day the email was sent.

What they wrote overestimated a lot about me, but the very first thing that they had to say was definitely wrong, even though they were smart:

“First of all, I am beautiful and have beautiful soul.”

I wondered if I was far away, “What is a beautiful soul…?”

If you have such a disease “What are humans? What is life? What is life?”

I always think about such things. I used to be a better person when I was fine, but I was able to do anything better…

I have an inconvenient body, and I’m becoming more and more annoying because of the stress. So what is a beautiful soul? I thought.

The image suddenly came to my mind.

Thanks to the patients I met through this blog and Twitter.

A beautiful soul is a soul that wants to live! I think that a pure soul is the power that wants to live when people and other things are scraped off. I felt it was a beautiful soul.

Unfortunately I can’t say I’m beautiful.

Various desires and dissatisfactions are filming.

They said that a body that cannot do anything by itself is not human life. They say that they don’t like being alive.

However, such a weak person seems to be human.

I wonder if that’s me.

0 comments on ““The very first thing that they had to say was definitely wrong…‘First of all, I am beautiful and have beautiful soul.’ ” writes the late Yuri Hayashi, ALS patient

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