ALS Assisted Dying Disability Japan

The late Yuri Hayashi, ALS patient consulted with physicians as she thought about what to do with her ‘remaining time’

“Is it best to spend as little time as possible to keep the pace going forward, or is it better to work and do something even if it puts a strain on your body?" The doctor answered without hesitation. "It is better to do what you can while you are doing it." As soon as I heard the answer, I cried tears.”

By Barrier Free Japan

August. 8 2020

It was reported on Thursday 24 July 2020, that two doctors were arrested by the Kyoto Prefectural Police for allegedly murdering a woman who had amyotrophic lateral sclerosis, or ALS, at the patient’s request. 

The deceased, a woman aged 51 named Yuri Hayashi, ran a blog and a Twitter account.

In a blog titled ‘Remaining time’, posted on July 10 2018, Hayashi starts by saying she is offering a “reply to a patient I met through this blog here.

Hayashi goes on to talk about about a consultation with her physicians:

It was in the hospital meeting room that I was sentenced to ALS. I asked a friend who I wanted to listen to with me, but only my relative was allowed to enter the meeting room. (This is also a strange story.)

I was listening to the three doctors in front of me because I knew what the disease was and what kind of disease it was, but I still remember the doctor’s voice “5 to 7 years”.

Last question? When I asked,

“Is it best to spend as little time as possible to keep the pace going forward, or is it better to work and do something even if it puts a strain on your body?”

The doctor answered without hesitation.

“It is better to do what you can while you are doing it.”

As soon as I heard the answer, I cried tears.

This is because the fact that one’s own life is being robbed is becoming a reality and attacks.

After that, I traveled to Hawaii in a wheelchair and made various memories such as driving, swimming, hot springs, and so on.

Unfortunately, I couldn’t continue my work until now.

That doctor’s answer may have been a personal opinion, but I’m glad I heard it.

So I want to think about what I can do now with another part of my mind, while frightened by the fear of illness, before becoming a body like me.

There should still be a lot to be done.

I still have a lot to do.”

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