Disability Independent Living Japan

Aiming at ‘independence after the death of a parent’, people with disabilities live in a private house in “trial experiment”

Two severely people with disabilities in their 20s who need medical care for 24 hours have left their parents for the first time and have begun living together in a private house in Fukuoka City.

Written with extracts translated from the Nishi-Nippon Shimbun

December 31st 2019

FUKUOKA – Two severely people with disabilities in their 20s who need medical care for 24 hours have left their parents for the first time and have begun living together in a private house in Fukuoka City.

For elderly parents with children with disabilities, securing a home after their death is an urgent problem. It is rare in the country to establish a home with only those with severe disabilities who have difficulties in communicating with words and signals, and an official said that “new housing that allows people to continue living locally while their housing options are limited. I want to establish the shape. ”

According to the Japan Welfare Association for the Protection of Severely Handicapped Children (Persons) (Tokyo), there is an estimated 43,000 people with severe physical and intellectual disabilities who have severe physical and intellectual disabilities nationwide, of which 70% live near their home.

Houses for “after death” are generally sheltered facilities for the physically disabled (209 places nationwide, 21,819 beds in total as of April), and have become important homes for many people. On the other hand, although there are group homes for persons with disabilities in various places, for those with severe physical and mental disabilities, nursing is always required and a 24-hour doctor must be secured, so the number of homes to enter is limited. Is the current situation.

It is a trial experiment to increase hosing options. Nurses and helpers who have been at their parents’ homes have just been relocated. During the day, they go to a facility. In the morning and evening when you spend time in their new home, nurses always come in and go out for clothes and meals. Currently, from 8:00 pm to the next morning, The parents of one of the two care for both , but in the future, they will consider leaving it to care staff who can provide medical care at night. Although there are issues to be overcome in securing human resources, they look forward to “complete independence.”

The main income of the two is the basic disability pension of about 80,000 yen each month. The rent is 40,000 yen (including utility expenses), and there is virtually no self-pay for home-visit nursing, where nurses provide medical care, and home care, where helpers provide general support, and all living expenses can be covered by pensions. Local understanding and support are also essential.

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